Instead of giving you the dictionary definition of CF, or telling you how amazing and awesome and wonderful my sister-in-law, Teri, is (which she is) - I thought Teri could give you a little glimpse into her day to day routine with CF. So here she is...
Mornings are tough! It is tough getting out of bed even though I've had
lots of hours of rest, it doesnt mean they were all spent sleeping.
Most nights, unless on antibiotics, are spent coughing. some coughing
spells lead into asthma attacks which has been known to last any where
from 5mins to 3 hours of coughing non stop. At that point I end up
going down stairs to do a neb treatment of albuterol.
Once up I have breakfast followed by a handful of meds, vitamins, and
whatever antibiotic I'm on at the time. The coughing never stops but is
better during the day than the nights.
Once Ari (my 20 month old) goes down for a nap, I do my Vest (a machine that shakes your lungs to get the junk out) and 3 nebs. This usually takes 45 mins to over an
hour if im on an inhaled antibiotic which is usually 28 days on and 28 days off.
I have been going to the Chiropractor 3 times a week because my back
and neck are always out from coughing so much. My ribs have also been out
do to coughing.
After Ari is in bed its round 2 of Vest and Nebs.
During meal time I take 3 pills to help me absorb fat. In Cf your
pancreas don't work to their fullest potential because they get all gunked
up from mucus.
Cf affects every part of my life, it sucks! But at the same time its a
blessing. God gave me this disease because I am a Fighter, and he
doesn't give people things they can't handle. I look at life like most
people have never looked at it. I only say that because i have been on
both sides of not having a disease to having one. I was diagnosed with
Cf at 15. Granted i had it from birth because Cf is genetic, but we
had no idea until i started getting really sick at age 13 and doctors
finally figured it out at 15.
If you have any questions for Teri, leave them in the comment section and she can answer them for you. Or if there is anything else you'd like to know about CF, let her know! I hope this gives you a tiny glimpse into what Teri goes through on a daily basis. If you'd like to help make things a little easier and help get this disease under control, then help us by donating to find a CURE FOR CF!
Here is Teri and her beautiful family!
Check out Teri's blog
Check out Ronnie's blog - Ronnie has CF and him and his wife just found out they are expecting their first child!
Check out Jen's blog - her 2 year old son, Gavin, has CF.
Mornings are tough! It is tough getting out of bed even though I've had
lots of hours of rest, it doesnt mean they were all spent sleeping.
Most nights, unless on antibiotics, are spent coughing. some coughing
spells lead into asthma attacks which has been known to last any where
from 5mins to 3 hours of coughing non stop. At that point I end up
going down stairs to do a neb treatment of albuterol.
Once up I have breakfast followed by a handful of meds, vitamins, and
whatever antibiotic I'm on at the time. The coughing never stops but is
better during the day than the nights.
Once Ari (my 20 month old) goes down for a nap, I do my Vest (a machine that shakes your lungs to get the junk out) and 3 nebs. This usually takes 45 mins to over an
hour if im on an inhaled antibiotic which is usually 28 days on and 28 days off.
I have been going to the Chiropractor 3 times a week because my back
and neck are always out from coughing so much. My ribs have also been out
do to coughing.
After Ari is in bed its round 2 of Vest and Nebs.
During meal time I take 3 pills to help me absorb fat. In Cf your
pancreas don't work to their fullest potential because they get all gunked
up from mucus.
Cf affects every part of my life, it sucks! But at the same time its a
blessing. God gave me this disease because I am a Fighter, and he
doesn't give people things they can't handle. I look at life like most
people have never looked at it. I only say that because i have been on
both sides of not having a disease to having one. I was diagnosed with
Cf at 15. Granted i had it from birth because Cf is genetic, but we
had no idea until i started getting really sick at age 13 and doctors
finally figured it out at 15.
If you have any questions for Teri, leave them in the comment section and she can answer them for you. Or if there is anything else you'd like to know about CF, let her know! I hope this gives you a tiny glimpse into what Teri goes through on a daily basis. If you'd like to help make things a little easier and help get this disease under control, then help us by donating to find a CURE FOR CF!
Here is Teri and her beautiful family!
Check out Teri's blog
Check out Ronnie's blog - Ronnie has CF and him and his wife just found out they are expecting their first child!
Check out Jen's blog - her 2 year old son, Gavin, has CF.
It's amazing how strong she is all while going through a day to day battle with CF. I have 2 friends that also have CF and they are both fighting everyday as well. What a great cause to raise money for! BTW Teri you have a beautiful family.
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